Never Too Young
Never Too Young is leading the change for younger bowel cancer patients. The campaign is giving younger patients a voice and changing clinical practice and policy to stop people dying of bowel cancer under 50.
Every year over 2,500 younger people are diagnosed with bowel cancer in the UK. While this is only around six per cent of those diagnosed, this number is slowly increasing. Our previous research found that younger bowel cancer patients have a very different experience of diagnosis, treatment and care. To get a better picture we’ve launched a new survey, which will help drive our future work in this area.
If you were under 50 and living in the UK when you were diagnosed with bowel cancer, we’d like to hear from you. Take our survey
What are the issues?
- Delays in diagnosis - younger patients report having to see their GP many times, sometimes more than five times, before being referred for crucial diagnostic tests.
- Access to genetic testing – patients diagnosed with bowel cancer should be tested for Lynch syndrome, a genetic condition that increases the risk of bowel cancer at a younger age. Yet many are still not being tested and access to regular colonoscopy, which can reduce the chance of dying from bowel cancer by 72% in people at high risk, is patchy across the UK. Find out more about our work on Lynch syndrome
- A lack of awareness - many younger people and healthcare professionals are not aware of the symptoms of bowel cancer, and are not aware of bowel cancer as a disease younger people can develop. This has led to delays in seeking help from a GP and delays in being referred for tests.
What are we calling for?
- Improved clinical guidance and practice on bowel cancer in younger people
- Improved identification of people with genetic conditions and access to regular colonoscopy
- Improved information for younger people on bowel cancer symptoms
What have we achieved so far?
Since we launched the Never Too Young campaign in 2013, we have:
- Changed GP referral guidelines to include younger people for the first time
- Published research and a risk assessment tool that will help GPs better identify bowel cancer in younger patients
- Influenced the introduction of NICE guidelines recommending all bowel cancer patients be tested for Lynch syndrome at the point of their diagnosis
- Published a guide on 'Younger people with bowel cancer: a guide for the under 50s'
How can you get involved?
- Take our new survey. If you were under 50 and living in the UK at the time of your diagnosis, we’d like to hear from you. The survey closes at 11.59pm on Sunday 5 January 2020.
- Become a campaign supporter and help lead change for younger people
- Share your story. If you've been diagnosed with bowel cancer at a young age we want to hear from you
- Read the stories of younger patients diagnosed with bowel cancer.
- We’re bringing together the voices of people affected by bowel cancer. Add your name to the campaign to tell political parties urgent action is needed.