Our work in Wales
Bowel cancer is the fourth most common cancer in Wales. Every year more than 2,200 people are diagnosed with bowel cancer in Wales and over 900 people die from the disease. However bowel cancer is treatable and curable especially if diagnosed early.
We undertake a range of activities in Wales as part of our work to save lives and improve the quality of life for all those affected by bowel cancer.
We raise awareness
Volunteers in Wales who have been affected by bowel cancer, deliver talks in workplaces to help people understand the signs and symptoms and risk factors of bowel cancer. If you would like to book a workplace talk, please do so here.
We are always on the look out for people to join the team by becoming an awareness volunteer. If you live in Wales and are interested in this role, click here.
We provide information
We publish a wide range of free patient information covering all aspects of bowel cancer; from treatment and surgery to dietary advice and much more. Out booklets and factsheets are used by most hospitals and are given to patients when they are newly diagnosed or at certain points throughout the course of their treatment. For information on how to download or order our information, please follow this link.
For those who would like to chat with other people who have experienced bowel cancer, please do visit our Forum. Our Forum is an online community and a place for anyone affected by bowel cancer to talk about their experiences, share their knowledge and support each other.
We train healthcare professionals
We deliver bowel health and screening training for those who want to promote awareness, good bowel health and the importance of screening in their community or profession. Our training can be tailored to the groups needs and is free of charge. Find out more here
Our campaigning and policy work covers issues affecting people right across the UK and we include the experience of people in Wales in all our work.
Our campaign ‘Right test, Right time’ highlights the challenges facing endoscopy services across the UK and in Wales we recently launched a Spotlight on Wales report focussing specifically on the challenges that exist around early diagnosis. Our report, which received excellent media coverage, showed us that Wales has some of the poorest outcomes for bowel cancer across Europe and that the Welsh Government and the NHS in Wales must urgently review the way diagnostic services are delivered.
Our 'Time to Test' campaigning work in Wales which focusses on Lynch Syndrome has shown that none of the seven health boards in Wales area delivering universal testing for Lynch Syndromeas recommended by NICE. These guidelines state that everyone who is diagnosed with bowel cancer should be tested for this genetic condition which makes individuals more likely to get the disease. As well as campaigning in the media, we have written to the Chief Medical Officer in Wales for assurance that this will be addressed and we look forward to Wales rolling out universal Lynch Syndrome testing for all bowel cancer patients soon. Read more about this story here.
Issues around endoscopy waiting times, Lynch Syndrome and the introduction of a new screening test called a faecal immunochemical test (FIT) were some of the main issues raised during a recent debate at the National Assembly for Wales where several Assembly Members spoke in support of our Spotlight on Wales report and the need to improve services across all Health Boards in Wales. The Cabinet Secretary for Health gave a comprehensive response to the issues debated and reassurance that challenges around Wales’ diagnostic services, the roll out of FIT and also Lynch Syndrome were very much in hand. Read about the debate, Assembly Members support and watch it back here.
We work with others
At Bowel Cancer UK we love to collaborate and work with others to improve outcomes for people with cancer and are involved in a number of groups, Alliances and Boards which means we can bring all the evidence we have to bear upon bowel and wider cancer policy development in Wales.
We have representations on a number of for a including:
- Bowel Screening Wales' FIT Implementation Board
- Wales Cancer Alliance
- Cancer Implementation Group (CIG) sub group on Detecting Cancer Early
- CIG Detecting Cancer Early sub group on screening
- Welsh Government’s Endoscopy Implementation Group
- Health and Care Research Wales Public Involvement Delivery Board
For more information and to feed in any issues through these groups please contact our Lowri Griffiths, our Head of Wales Lowri.firstname.lastname@example.org
We encourage people to take part in the screening programme
In Wales the bowel cancer screening programme is available to all 60-74 year olds. Uptake rate is currently 54% but we need to do better. Thousands of people are missing out on the chance to detect bowel cancer early when it is easier to treat. Our awareness talks encourage people to take part in screening by talking to them about the benefits and explaining how to do the test. Book one of our talks here. If you would like to speak to someone from the screening programme, they would be glad to hear from you. Find out more about bowel screening in Wales.
We are determined to save lives from bowel cancer but we can’t do this without you. There are lots of ways you can support us in Wales and help us to stop bowel cancer.
Our supporters and volunteers make change happen. Every bake sale, run, corporate partnership, awareness talk and donation brings us a step closer to stopping bowel cancer.
We are working hard with researchers across the UK. We are campaigning at the heart of Welsh Government. We support patients and their families, and we are educating people about bowel cancer.
We are always looking for people to join us by helping us make change happen. Please take a look at the ways you can support us by clicking here. Thank you / Diolch
Our team in Wales:
Lowri Griffiths, Head of Wales
“Every time I speak to patients and their families I am inspired by their stories and motivated to make sure that people receive the best possible services that are on offer. There is lot of work to do to make sure that everyone gets the best outcome following diagnosis and I feel privileged to be in a position to help that happen!.”
Mike Locke, Fundraising Manager
“The fact that Wales is benchmarked in Europe for its poor bowel cancer survival rates is simply not good enough! I am proud to be in a position to help fundraise and support research and life saving work for the people of Wales!”