We’re campaigning to improve early diagnosis by ensuring people have access to the right test at the right time. Around 16,000 people die from bowel cancer each year, making it the UK’s second biggest cancer killer. However, this shouldn’t be the case as the disease is treatable and even curable if diagnosed early. An estimated 9 in 10 people will survive bowel cancer if diagnosed at the earliest stage.
What are the issues?
- A serious endoscopy crisis: Demand for endoscopy services, which provide key diagnostic tests for bowel cancer, has been increasing dramatically. However, there is a serious lack of capacity within endoscopy units to meet this demand. This is having an impact on waiting times, with many people waiting too long between being referred and having their test. Without adequate capacity to meet this demand, patients will continue to be kept waiting for crucial diagnostic tests.
- Delays to the new screening test: Scotland is the only UK nation that has introduced the faecal immunochemical test (FIT) into its screening programme. FIT is vital for improving the chances of an early diagnosis as it can detect more early stage cancers than the current screening test; it can be adjusted to be more or less sensitive to traces of blood in poo, so more or fewer cancers can be picked up. Deciding what level of sensitivity FIT should be set at, considering the impact it will have on endoscopy, has contributed to the delays to its introduction.
- The quality of endoscopy service varies across the UK. Many units do not meet the quality standards set out by the Joint Advisory Group for Gastrointestinal Endoscopy (JAG). This means that some patients are being referred to units that are not up to standard and whose quality cannot be assured. With the added pressures that the expected increase in demand for diagnostic testing will bring, ensuring services continue to be of the highest quality is vital to stop people from dying.
What are we campaigning for?
- An optimal screening programme that screens from the age of 50 using FIT, in line with Scotland and international best practice. There needs to be a clear timetable to increase the sensitivity of FIT and extend the age range in line with endoscopy capacity.
- Greater investment to increase endoscopy capacity by setting out a comprehensive action plan to tackle the growing crisis; increasing the number of trained and certified staff to carry out procedures; reducing waiting times; and bringing all units up to JAG accreditation standards.
What have we done so far?
- Supported Lauren Backler hand in her petition to lower the screening age from 60 to 50,in line with Scotland, which has received a staggering 417,000 signatures.
- A change in the new GP referral guidelines for suspected cancer so GPs can refer patients at lower levels of risk than applied with the previous referral criteria. This means patients with persistent 'low risk' symptoms can be assessed more quickly and improve the timeliness of their diagnosis.
- A focus on improving diagnostic capacity in the new cancer strategy.
How you can get involved?
- Become a campaign supporter and help lead the change and improve early diagnosis of bowel cancer.
- Read our blog on an optimal bowel cancer screening programme set out by the UK National Screening Committee.
- Find out more on endoscopy services at breaking point.
- Share your story. If you have had a colonoscopy of a flexi-sig we want to hear from you.