Help us to stop bowel cancer

Read our reports

Improving services for Lynch syndrome: who’s responsible?

In July 2016 we carried out a nationwide survey to improve our understanding of the patient experience of being diagnosed and managed for Lynch syndrome. This report collates the results which reveal a worrying picture of delayed diagnosis, poor monitoring and unacceptable waiting times for this high risk group. We have found that a lack of leadership, locally and nationally, means no one is taking responsibility to fix these problems. Download the report

Lynch syndrome testing and bowel cancer in people under 50 2016

In August 2016 we published findings repeating the Freedom of Information (FOI) request we previously carried out in 2015. We asked all hospitals in the UK if they follow The Royal College of Pathologists clinical guidelines which state that a simple set of tests, which can help identify people with Lynch syndrome, should be carried out automatically on all people diagnosed with bowel cancer under the age of 50 at the time of diagnosis. We found that 30 per cent of hospitals do not carry out the tests. Download the report

Leading change for younger bowel cancer patients 

In 2015, two years on from the original Never Too Young report, we carried out a follow up survey of over 400 people diagnosed with bowel cancer under the age of 50. We believe this to be the largest survey carried out of younger people. Download the report 

Lynch syndrome testing and bowel cancer in people under 50 2015

In 2014 guidelines were issued requiring all people under the age of 50 to be tested for Lynch syndrome at diagnosis – a condition that increases your risk of developing bowel cancer. This report, published in 2015, looks at whether guidelines are being followed across the UK. We found that lots of hospitals were not carrying out the test. Download the report 

Supporting people at higher risk of bowel cancer

Clinical guidance recommends that people in high-risk groups should be in a surveillance screening programme to receive regular colonoscopy. However many hospitals don’t have a programme for managing high-risk groups and people often have to wait a long time to be seen. Download the report

The experiences of younger bowel cancer patients

The original Never Too Young survey, carried out in 2013, exposed the shocking experiences of young people in their diagnosis, treatment and care. Our results revealed a picture of delays in diagnosis, isolation and gaps in support and care services. Download the report

We are determined to save lives from bowel cancer but we can’t do this without you. Support vital research and lifesaving work to stop bowel cancer.
We are determined to save lives from bowel cancer but we can’t do this without you. Support vital research and lifesaving work to stop bowel cancer.